Be Heard – Long Term Care Changes in 2015-2017 State Budget

In regards to the proposed budget by the Governor, there are many options for parents, caregivers, advocates, and individuals living with disabilities to have their voice be heard. If you have not yet heard about the proposed changes to long term care in Wisconsin, they will impact many individuals who utilize any type of long term care services. Essentially, the proposed budget outlines the expansion of Family Care statewide, and the “rolling in” of the IRIS program into Family Care, according to Wisconsin Board for People with Developmental Disabilities (BPDD). Also according to BPDD, Family Care would change to include medical care. In IRIS, their 10,000 participants have the ability to choose how to spend their money on services such as bathing, cleaning, and others that allow them to live independently. There is also a projected cut of $19 million to the personal care program. While self-direction in Family Care can compare to the self-direction of IRIS, they are not the same. According to BPDD, in IRIS, each person is told how much they have in their budget, so that they know how much they can spend on long term care services. In Family Care, members usually are not told how much funding they have for long term care services, but are only told the budget they choose to self-direct. While IRIS members are able to self-direct all of their services, Family Care members have to work within the Resource Allocation Decision (RAD) guidelines, and work within those restrictions. Most Family Care members only choose to self-direct supportive home care. A large difference between the programs is the restrictions on who one can hire to provide services. In IRIS, there are not any restrictions on to who can provide services, besides a background check. For example, a family member could be hired as a service provider. In the Family Care program, a person has some flexibility in choosing providers in the ones you are self-directing, but usually limited to using providers in their MCO provider network for all services the individual is not self-directing.

Please remember that this is only a proposed budget, and nothing is finalized. All individuals have lots of options for their voices to be heard on this topic. For instance, there are multiple WI Legislature Joint Finance Committee Public Hearings coming up in March. At these meetings, all individuals have an opportunity to voice their opinions on the proposed state budget. The nearest one to the Fox Cities is at Brillion High School (W1101 County Road HR, Brillion WI 54110) from 10:00 a.m. – 5:00 p.m. on Wednesday, March 18th. Representative Steineke will also be holding listening sessions on the State Budget. These are on Tuesday, March 10th at 6:30 p.m. at Nichols Village Hall (N9065 Krull Rd. Nichols, WI 54130) and Monday, March 23 at 6:30 p.m. at the Howard Village Hall (2456 Glendale Ave. Howard, WI 54313). Also in attendance will be Representative Dave Steffen and Senator Rob Cowles. Also remember that it is possible to write, email, or call your legislature at any time. Writing a letter to the editor is also an effective way to educate the public and your representatives about your opinions regarding these matters.

SOAR Fox Cities has created a parent Facebook page where parents will be able to connect with each other online. This page is not anonymous, but private to those who are added to the group. For questions or comments regarding the proposed budget or if you wish to be added to the SOAR Fox Cities, parent page, please call Mitch Cornils at (920) 731-9831 x111 or email him at [email protected].

Sources:

Milwaukee Journal Sentinel 

Disability Rights Wisconsin – Budget Summary

Another great article that brings awareness!

For those of you who did not read this article in the Sunday newspaper I thought I would share. We are thankful for all the Mom’s (Happy Belated Mother’s Day!) and Dad’s that come to our programs and who have made such a difference in their own lives. The article below is about a parent who had the chance to make a difference in her adopted families lives. Props to her and all of you for what you do. You’re all amazing!

Click Here For The Article!

Happy!

If you haven’t already seen this video that was posted in honor of Down Syndrome Awareness Day you should certainly take a couple minutes and view it.

All of these dancers have a spring in their step. Since Spring is in the air what better time to enjoy these great dance moves!

Happy Dance Video

World Down Syndrome Day 2014

World Down Syndrome Day is coming up on the 21st, with a little over two days to go media sources are sharing all kinds of great videos. Here at the Arc we want to share some of the with you. But before sharing an awesome video I want to share a little bit more about WDSD 2014!

This year is the 9th anniversary of WDSD, every year there is a theme that has a different focus. This year the theme is “Health and Wellbeing- Access and Equality for All”. The Arc is always looking for fun ways to provide you with ways to get active and healthy whether it’s a cooking class or fitness class! If you have a fun idea of a class you want to see this year let us know! For more information on the Health and Wellbeing topic you can check out their website worlddownsyndromeday.org
They have a video about healthcare options online that is interesting!

I also wanted to share a cool video I saw today about a mom finding out her son will have down syndrome. It’s pretty awesome and I’m sure many people can relate to this #dearfuturemom and thought this would be a great place to share! Future Mom Video

Here’s hoping spring is here in time for World Down Syndrome Day! 🙂